Posts

Co-dependent -- a dirty word?

In my opinion, marriage is a co-dependent relationship. That’s the way it should be. The couple depends on each other as a unit in order for tasks to be completed or simply to make life easier for each other. Co-dependency works for marriages. Co-dependency is not a dirty word. I read somewhere (I can’t remember where) that anyone who is involved with an alcoholic is most likely co-dependent. Well, that’s kinda like saying most skinny people do not like chocolate. I know lots of skinny people who absolutely adore chocolate just like I know spouses, parents, siblings, and friends of alcoholics who are not dependent on keeping the alcoholic drunk. The word co-dependent seems to have been tossed around so much that we could just do away with “wife”, “brother”, “father” and any other relationship status titles. Kleenex is a tissue, but instead of Read more »

Leopards don't change their spots

FINALLY! I’m finally getting back to my quirky self. I’m feeling like I have found my sense of humor and my fortitude again. It’s been a long month but it has been worth the time off. I’m over the pneumonia and my blood tests indicate I’m getting back to normal. Well – normal for me is always just a tad bit off – so I guess I’m normal for me. Riley was in respite at a nursing home for eleven days. He also had pneumonia and a urinary tract infection. He recovered from those illnesses much faster than I did. I suppose if you have someone waiting on you hand and foot and are receiving daily visits from nurses and doctors, anyone would recover faster. The reports from the hospice staff indicated that Riley was bright, chipper, and able to get himself in and out of bed and into his wheelchair. He was eating well and communicating during the times he was lucid, which wasn’t all that often. Everyone was pleased with how well his respite stay played out. While Riley was in respite I had one, a...

End of life reality

I don’t know why it always surprises me that Riley continues to be immortal. A few days ago we were told that he had only hours to live. The next day he rallied and he could live another year or more. We are living on a see-saw with Riley. End-stage liver failure is a horrible way to die. I watch him as he struggles for words that fit the meaning of what he wants to say. I see the confusion on his face when I don’t understand what he’s talking about. Often he will be in mid-sentence and begin quoting phrases from books that he has read in the past. Riley cannot control his bowels or his bladder. He doesn’t seem to have any cognitive awareness of his lack of continence. However, he will pick at his diaper until he can get it loose and remove it from his body. He then wants no covering and just wants it to be in the breeze -- so to speak. He has other people clean the feces from his buttocks, change his clothing, and give him a sponge bath. There is no longer any sitting in his favorite ...

Sick vs drunk caretaking

I often hear people telling me that I can’t possibly be a good caregiver for Riley because of all our past history. I’m told that it makes me hostile and that he would be better off in a nursing home. I don’t agree with any of that nonsense. I made a commitment to both my daughter and to Riley to “see this through” to the end. That’s what I intend to do. When Riley returned home after having been in a nursing home for a week so that I could get some respite, his health had greatly declined. I called the hospice office and told them I believed that Riley had a bladder infection and that I needed a prescription for something to treat it. It took more than two weeks for someone to come get a urine sample for testing. Then it took about five days for the lab to report that he did, in fact, have a urinary tract infection. We received the medication late the next afternoon. While we were waiting for the medication, Riley became increasingly sick. By the time I got the first dose into him, he...

For his little brother...

I received the following letter from a reader and it moved me to a point where I knew I had to share this with my readers. If you read my blog, then you know the frustration of trying to help someone when all help seems futile. Please take the time to listen to the song and follow along with the lyrics included below. -- Linda Hi Linda, My younger brother has struggled with an addiction to heroin for about 6 years. It has ruined his character, destroyed his self-control, and robbed him of all of his money and possessions. Our whole family has tried to help him recover through several different rehabilitation services, but every attempt to save him from his addiction seemed to fail. At one point, he begged for money living on the streets as we let him try to find his “Rock bottom,” but we realized this wasn’t going to heal him or improve his situation. We eventually tracked him down and we haven’t given up hope that he will change. I know in your line of work, you are familiar with hund...

Coming to my senses

I believe strongly that knowledge is the key to survival. It goes right along with knowledge equating to power. The more you know the more powerful you can be. I suspect that Riley’s cancer has returned. There are physical indications that tell me that something is “off”. It really doesn’t matter if the cancer is back or not. He is already in hospice for end-stage liver disease and a confirmation that his cancer has returned will not change that. He will not get treatment for the cancer both because he is in hospice and he has stated that he wants no more chemo or radiation. So, really, what’s the point in putting him through the round of testing (which takes months) to determine if any Tommy the Tumors have returned? A few weeks ago, Riley was in a nursing home for five days while I had a little respite. When he returned, he told me that he had not been given his medication correctly. I thought he was just talking nonsense until I observed his behavior. He definitely was off his meds....

Panther in the woods...

Last week, Alea, my daughter and her friend went to the Isle of Wight Animal Shelter. They weren’t looking to adopt but they just wanted to visit with the animals and see the facility.  A kind-hearted attendant gave them a tour of the facility and explained the purpose of each separated area. When she returned home she told me that she could not ever do that again. She had been thinking about volunteering, but after the tour she realized that she just wanted to take all the animals home and give them a good life. Besides there just wasn’t any room in her schedule for much of anything other than work and taking care of home stuff. I asked her what she liked the most about the shelter. Her response was that she liked the part for the unusual animals. Her favorite animal was the panther. We couldn’t imagine anyone taking a panther as a kitten and trying to raise it as a domesticated animal. Panthers should be free to do what panthers do. Behind and to the side of our house is all dark...